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Saturday, January 7, 2012

20 weeks

We went to the perinatologist, Dr. Rinehart, on Thursday and then the obgyn, Dr. Dullye, and the pediatric cardiologist, Dr. Kao, yesterday. Good news is Adeline seems to be growing well and everything else looks fine. She seems to be "tolerating the condition" is the phrase used.

They are looking at doing an induction at 39 weeks. They want to baby in there as long as possible.

The cardiologist gave us the medical diagnosis.

It is:

Double inlet ventricle
L- transposition of the great arteries
Interrupted aortic arch
Hypoplastic right ventricle
Ventricular inversion

Basically the left ventricle is the larger, which is good, but the arteries are flipped. What they initially thought was the smaller artery, the pulmonary artery, is not. It is the aorta that is smaller and interrupted. Long way of saying she will definitely have to have the first surgery. It will involve both placing a shunt and building a functioning aorta from the current pulmonary artery. This surgery will happen within a week of birth. She does have Hypoplastic Right Heart, but her surgeries will be similar to what they do for Hypoplastic Left Heart children.

Biggest thing now is figuring out where to have the baby and where to have the surgeries, and we now have to interview surgeons. Either Dr. Mendeloff at Medical City or Dr. Forbess at Children's Hospital seem to be the choices.

Thanks for all the prayers and support.

6 comments:

  1. thanks for keeping the updates coming. still praying. love you all.

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  2. I love the name you chose!! So pretty :) I have been thinking of you all and my prayers are with you!

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  3. I used Dr. Rinehart for both of my girls and we loved him. Our prayers are with you.

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  4. Vivi and I pray for sweet Adeline every night. Much love Camille. I am happy to help in anyway I can when/if you need.. Xoxo

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  5. You guys are in my thoughts and prayers.....you are being so very strong. Sweet Adeline and all of you are now at the top of my prayer list. Love, love LOVE her name! Remember that you are stronger than you think you are.....Beckee

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  6. You've been on my prayer list, too. I love reading about your journey so far.....made tears swell up in my eyes. I am grateful you have the foundation .......and relationship .....with the Lord. In the coming days, may He receive the glory. Prayers and Blessings.....Lyn

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