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Friday, December 14, 2012

Cardiology & ENT Update

Addie had a follow up cardiology appointment yesterday and an ENT appointment today. The cardiology appointment went great. She had an x-ray and everything looked good so Dr. Ikemba took her  off her diuretic, Lasix. They also discontinued her iron yesterday. She is only on Prevacid, Atenolol, and Aspirin now. So awesome! Her sats were 89 and she weighed 15 lbs. She has remained on her weight growth curve, which is the goal. We don't have to go back to the cardiologist until March 21. I am so excited about this!! 3 months of no clinic. Amazing. In March, she will have an ECHO and EKG. Also, they will probably determine whether or not she needs to be on Atenolol anymore. I am praying she has grown out of her SVT!

The ENT appointment today did not go as I had hoped. They were checking Addie's paralyzed vocal cord to see if it was repairing. Unfortunately, it is not. Dr. Brenski, the ENT, said there was a 25% chance of repair now until Addie is a year old. We will go back in June to check. In June, they will determine whether or not her left  vocal cord is a total loss (I can't remember the exact words Dr. Brenski used, so I will just say that) or not. To say I was disappointed doesn't cover it. Here is the thing though; Addie isn't aspirating or having trouble eating so she is handling the paralyzed vocal cord very well. Her right vocal cord has most likely compensated for the left vocal cord. She is loud and will hopefully not have any long term effects from this. Dr. Brenski said there was no way to know right now what the long term effects would be, but there still is a CHANCE for recovery. Dr. Brenski said she felt like Addie was just going to be one of those kids that you wouldn't even know that her vocal cord was paralyzed (if it stays that way).

Please pray for Addie's vocal cord to repair. I had a hard time today not showing my disappointment that it hadn't begun repair. I just don't want this to be one more thing that she has to deal with. We do feel very blessed that it isn't affecting her in any way now though.

1 comment:

  1. She loves her voice and so do I! It's the sweetest sound I ever heard. I remain hopeful that her left vocal cord repairs!